Emily's Journey through Stage IV High Risk Neuroblastoma. Please check back often as we will update as often as we can.

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Thursday, May 9, 2013

Scans Update

Scans are completed and Emily is stable. We are happy there is no progression but would love to have heard something different but it's stable. Some spots are decreased from Sholler's view but all of her spots are still there.

It was a long day at the hospital and we got back in around 6. The best of this all is Emily looks wonderful. She is 33 pounds and she has lots of hair. We move forward.

We start the long drive home tomorrow taking a break tomorrow night and will be home Saturday sometime.

We come home to start Round 5 of the Avastin trial. Doing two more rounds and then back to Michigan for scans. Depending on how things look after round 6, we may put Emily back on the DFMO trial. At least that is what Dr Sholler suggests. We are always looking.

Just a quick update. Hug and kiss your kids and tell them how much you love them.

Tuesday, May 7, 2013

Michigan Week

It's that time again...but first I must apologize for the lack of updates on Emily. I also want to apologize upfront for typos, traveling and iPad, easy for that to happen. This will be a short update, but a quick update of where we are.

Emily finished round 4 of the Avastin Trial last week. This round came with quite a few unexplained off and on fevers, unexplained bouts of throwing up, low glucose with high WBC and ANC, then dropping low and needing platelets to almost needing blood. She finished off the round though, and now we are here...

It's been a long two days of traveling and later tonight we will have made our destination. It will be another late night!!!! Tomorrow Emily has clinic with port accessing and count checks and then her MIBG injection. Thursday she has her MIBG/CT scan and then afterwards we meet with Dr. Sholler for results. Needless to say, dad and I are feeling "scanxiety". Obviously we are hoping to come out from scans with less disease or even stable.

I am going to end this, but I want to say thank you to everyone who continues to follow us in this journey, pray for our family and most of all Emily. Thank you for your love, donations and support. Your emails, messages, words are each read and much appreciated. If you have your "Team Emily" gear, we ask that you wear them either tomorrow of Thursday and share your pictures by tagging us on Facebook.