Emily's Journey through Stage IV High Risk Neuroblastoma. Please check back often as we will update as often as we can.

Emily's Journey's Most Recent Facebook Post

Monday, February 14, 2011

Monday, February 14, 2011

Auntie April, Emily with her Justin Bieber pjs. Erin
Yesterday Emily had a great day!  She was full of energy and just enjoying life.   It was great to see her so full of energy. Auntie April and Erin came by to spend some time with Emily, which Emily enjoyed playing computer games with them.  Then Jessica and Will stopped by and brought Emily some finger paint and stickers and Emily had a blast finger paiting and Erin cutting out stick figures. Doug brought Brianna over and some great lunch that came right in time when Emily was starving and she ate it right on up.  It was the first time we had tried the organic hamburger and it was yummy!

So, far so good Emily has not experienced any vomitting, and she only seems to have a stomach ache in the morning.  She is doing great though.

She is still crying for home, but mostly at night time, during the day she just makes comments about wanting to be at home and play with her own toys. 

Doug has been doing a lot of running for us to make sure that Emily and I have the food that we need to eat and to make sure we have everything that we need.  Thank you honey, it means a lot to us.

Last night Emily wanted to play air hockey in the room next to us and the nurse even gave Emily about 45 minutes to play off the IV, and Emily was just off the wall, she was running, jumping and going crazy. 

Emily had an accident last night and I woke up in a wet bed. The nurse just happen to come in at the time I woke up and was going to check her counts.  So we should have those back in a few hours. Emily woke up thinking she was sweating again, but did well when I told her what happened.  Thank you to the Nurse for cleaning the bed while I got Emily and I dressed in clean clothes and she could go back to sleep.

Emily has 2 more days of chemo and hopefully she should be home Wednesday sometime.


Doug, Happy Valentine's Day to you, to the one I love and will spend the rest of my life with.  I am so happy to have you and you are such a wonderful husband and father.  I am even happier to be going through life with you!

Doug and I will also be celebrating our 4 year anniversary on the 24th of this month. I LOVE YOU!

Love Shannon 
Happy Valentine's Day to the rest of you! Hold your kids tightly and love them with all your heart.


I just wanted to share some pictures from when Emily cut Daddy's hair and the finished hairdo.  We all love it.  

Emily cutting Daddy's hair.

Daddy's new hairdo


  1. Tell Emily she did a great job cutting hair! When she grows up maybe she will be a hairdresser? We pray every night for her. Even my 15 month old says 'god bless emily' though it sounds like 'gobs mimi'

  2. I just left a comment on your website. Your other one. Emily is such a beautiful child. I can tell your husband is one AMAZING man and father by looking at these photographs!

    As I said on your original blog, I will pray for your precious little princess. I had a similar situation with my own son and my heart just breaks in two for you because I know you would trade with your child in a 1/2 of a heartbeat. Even faster.

    It isn't fair, but I have learned the hard way that life is NEVER, ever fair, but we do grow stronger. Is it worth the suffering we sometimes are forced to go through? It doesn't seem so, but I believe your daughter has more time to change this world. DECADES more time to change it!

    I'm sure she has already touched and changed many lives already, most certainly your family but even well beyond, and she isn't finished yet.

    I know what it's like to live inside of a hospital, to see your child in pain, to agonize daily, wondering what will be. It is THE WORST pain and feeling that God could ever allow us to feel.

    I can't even read too far into your story here because the water works...I just can't control them anymore when it comes to children, and illness. It isn't fair:(

    God bless you..God bless your rock of a husband, and your sunshine...your daughter. Her strength will get you all through.

    Much luv,

    PS- I am following you and would love for you to folow me back. I'm definitely willing to be a shoulder. That is my destiny in life and I just enjoying helping others. It helps me in return. If you wish to follow me back I'll add my link below.

    'There is nothing you can't get through in life. God tests us, but he can never break us.'