Emily's Journey through Stage IV High Risk Neuroblastoma. Please check back often as we will update as often as we can.

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Monday, May 2, 2011


WEDNESDAY, APRIL 27, 2011 11:50 PM, EDT
I hope everyone had a great Easter and got to spend time with their family!  This is exactly what we did.  We woke up and the girls enjoyed going through their baskets and playing with things. This was the first Easter with no candy and it was actually not so hard at all.  Dad and I got to head out Friday night to get the girls Easter stuff, so it was nice to get that done.

Monday Emily had clinic to check her counts and to talk with the doctor about her weight loss that dad and I were worried about. Emily's counts were up so we were able to stop giving her the GCSF at home via her lines, which is great. Emily did lose a few more pounds which was concerning to dad and I. So total she has lost almost 5 pounds.  Doug and I went ahead and placed her back on the appetite stimulant to stimulate her to be hungry.  Before it seemed to work so quickly, even though they said it would be 48 to 72 hours, well I think the 72 is more accurate.  It took her a while to get her self back to being Emily because Friday and Saturday and some of Sunday she was still very tired and groggy and very whiney, however Sunday afternoon and definitly Monday she really started to come around.  The doctors have Emily starting her next round of chemo on Monday, so Emily has some time at home to try to gain some of the weight she lost.  I doubt that we will be able to get that back before we head back, but at least we can try to see if she can get a pound or so back.  

Overall, we are all happy to be home together and enjoy the Easter Holiday together and spending time with family!  We have enjoyed the family time, something that is hard to enjoy while at the hospital.

Hope everyone is doing well, Mommy is exhausted tonight and is having a hard time keeping her eyes open tonight.  Make sure you hug and love your kiddoes and hold them tight.

I will try to update more tomorrow night, I'm just exhausted tonight to no end.  

Good Night!!!

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