Emily's Journey through Stage IV High Risk Neuroblastoma. Please check back often as we will update as often as we can.

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Wednesday, September 14, 2011

Day 0 today...

I really wanted to sit and give you guys a pretty hefty update from Proton Radiation to Stem Cell, and honestly I have some work to do and I am just completely exhausted.  Tomorrow is Day 0 and Emily will be rescued with her own stem cells. So far she is doing ok.  She did get sick a couple times from the chemo and has some ups and down, but overall she is doing well!  We hope that this stays the same.  However her counts have dropped and as part of the side effects is mouth sores and such.  So we will have to see what happens.

Anyways, lots more updates to be given in reference to Proton Radiation where it looks like we will have to travel in order to get Emily what she needs to have less radiation on parts of her body that does need radiation and not t cause cancer in those parts of her body later  Updates on Stem Cell Transplant #2 and updates on September being Childhood Cancer Awareness Month.  

I promise to update more, I'm just exhausted.  

Remember to always hug and kiss your babies.  

Lastly, Emily's address:
So many people have been asking for our address and want to post it on websites to send Emily cards, packages or even donations, however sometimes giving out a home address we have always felt uncomfortable posting, so we have a PO Box that you can send cards, packages or donations.  This will be a permanent address, so it will not change and you can post for others.
Emily Hubbel
P.O. Box 5383
Midlothian, VA 23112
Thank you for your love and support as we continue this journey!

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