Emily's Journey through Stage IV High Risk Neuroblastoma. Please check back often as we will update as often as we can.

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Monday, November 7, 2011

On The Way to Philly

Previously posted on Caringbridge!

We are on the way to Philly, well actually New Jersey! I have tried to update the past two nights but have fallen asleep each night while updating! Thursday night Doug and I were trying to be ahead of the game and email a few campgrounds in case the RMH did not have anything! We emailed 3 places and Friday morning while waiting for Emilys counts to come back, we received a call from a wonderful man by the name of Mike! Mike was calling from Yogi Bear campground to offer us a camp site at his campground for no charge! Amazing man, and we could not think him enough! He even is allowing us to leave the camper for a few days so that we don't have to bring it home and then bring it back for having to be there next week! Mike and the rest of you at the campground The Hubbel Family wants to thank you for taking that added stress and uncertainties off our back and we know we have a place to say! Emily is beyond excited because she loves Yogi and she loves the camper! Thank you guys again!

Now we just need to get to our destination, but we have hit some major traffic congestion! Thankfully Brianna is napping!! Poor thing, we had to take her on an unscheduled doctor visit last night to KidMed because it didn't seem like her ear was getting better and her poor butt was so red that she was screaming and crying! So, of course she has a double ear infection and yeast infection!! She had to get a shot Injection of antibiotics and tonight she will start on oral antibiotics and some bum stuff to help clear her up!

Tomorrow Emily will have her bone marrow aspirate done in the morning! And get her MIBG injection and CT prep and then scans Tuesday!! Dad and I are both a bit nervous and really hoping for clear scans! Ok so s bit nervous isn't the words that we really feel, but we will take it one day at a time and do what we need to do to move forward!

Dad and I had a few hours of Doug and Shannon time on Friday night! Thank you mom for coming over for a little bit so that Doug and I could be kidless! The few hours wasn't long enough, but it was definitely needed! We are looking forward to thanksgiving when dad and I will have some Doug and Shannon time as well! This just isn't normally something that do, but it is so needed!

I will try to keep you all updated as to how things are going! Oh thanks to all the moms who have reached out to me to let us know they are at CHOP and leaving their phone numbers and how to reach them! Thanks, means so much during a time like this and others reaching out to send their thoughts and love! We all stick together and I love that everyone does this! And I know everyone feels the same way we do FU Cancer!

Have a good night!! Hopefully we reach our destination soon, still looks like a few hours or so! Love to you all! Keep sending your love, thoughts and prayers for CLEAR SCANS!!

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