Emily's Journey through Stage IV High Risk Neuroblastoma. Please check back often as we will update as often as we can.

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Saturday, December 17, 2011

Week 2 & 3 (Post MIBG Therapy) Update

Sorry I haven't updated in a while, but when things are "almost normal" you really almost forget.  So I have been updating  Facebook just to keep everyone one to date. See below for the last two updates

Dec 10th: Week 2 post MIBG therapy! Emily is feeling better and eating better! She needed platelets again on friday and her ANC is dropping! We are hopeful that it will come back up and she won't need the neulasta shot, but we will have to see! Last night we took girls to Christmas program where Emily was going to school! She enjoyed seeing her friends!

Dec 17th: Week 3 Post MIBG therapy, Emily has had a pretty good week, she is eating well also gained a pound (YAY) and seems to have energy. Her counts are steadily dropping, there is a trend of them steadily dropping. Platelets were low (21) Tuesday, but they wanted to hold off to see if they would come back up, Friday platelets were 7, so she received a transfusion. Emily's hemoglobin also dropped Friday, so she will get a transfusion on Monday. Being that we are only a week from Christmas, we are being careful not to get Emily around a lot of germs and land ourselves in the hospital. So far so good though!! Send Emily lots of love and she is loving all the Christmas cards, so thank you so much!! Have a great weekend.

Please also send out a lot of love, thoughts and prayers for some other families fighting NB right now that could use some love right now: Ethan Hallmark , Hayley Kudro andJoshua Johnson!!

Tomorrow night marks a start to our journey (its been a year) and December 23rd marks the day we learned that Emily had Neuroblastoma.


  1. keep up the good work braveheart and have a Merry Christmas

  2. One pound great! we are continuing to pray and send lots of love your way. We hope you all enjoy your holiday! It was great seeing you all at the Christmas play. Alex has the picture of Emily and him up in his room Merry Christmas to all of you.

    Love the Bowles family