|Emily during chemo at clinic 7-19-12|
Emily has been doing ok this week, she has been falling asleep about 7-730PM this week and then getting up in the morning to go to clinic for chemo. During the day she seems to be doing fine, but during the evening she is a bit more tired. A couple of times this week she has complained of tummy pain, the first time we gave her zofran, but tonight we gave her some peppermint oil that we rubbed on her belly and that seemed to help a bit. As the week has gone on, she isn't eating as much, so we are giving her megace in the morning and evening with hopes that this will help with her eating. Thankfully she didn't have any side effects to the Zometa and overall seems to have done fine with that.
Emily will have her fluids tomorrow evening and then Saturday morning, I will be able to deaccess her. Sue and Jojo will be coming into town tomorrow afternoon to visit for the weekend and we are looking forward to relaxing with them. This round is already proving to be a bit harder on Emily than the last one. We would suspect that the increasing of the Nifurtimox the day before chemo up to 3 and keeping on probably has a lot do with that. We are hoping for no fevers, continued eating habits and no weight loss, so please hope and think about her during this time.
About a week ago, Emily's bestest friend Sue and Jojo, made t-shirts with Emily's Hope Cure Childhood Cancer. They were making them and sending them to us and Sue asked for Dr. Sholler's address because she wanted to send her the Neuroblastoma pin and a t-shirt and a thank you note. Sue and Jojo, you guys rock and we love all that you do for us and other families.
Just a quick update to tell you about how Emily is doing and Dr. Sholler. Please send out your love and thoughts for Emily for an easy Friday with no transfusions and no extreme drops of counts and a great weekend.