Emily's Journey through Stage IV High Risk Neuroblastoma. Please check back often as we will update as often as we can.

Emily's Journey's Most Recent Facebook Post

Thursday, August 9, 2012

CLEAR

I really couldn't think of any other way to name the title, but to say CLEAR. 
We received an email this morning,
Ms.Hubbel,
Great news!! The MIBG is reported as completely negative (not even a single tumor spot was noted). I need to talk to the radiologist to reconfirm and I will call you back later.
Madhu

Doug received the call,

Mr Hubbel, the MIBG scan is negative, compared to last scans done at CHOP. Doug did ask when we have Emily's scan after Round 6, would they possibily see something that he didn't.  He stated because they have state of the art they may be able to pick up slight/faint disease, but it is clear on ours.

IS THIS REAL? Yes, it is real.  The fear of progression and how Emily has been the last two weeks, have been absolutely scary as hell, but today we celebrate she is "CLEAR"

Dr Gowda said you all need to go out and celebrate this weekend and we agree! Celebrate is what we need to do.

All of the amazing comments, prayers and everything else  you all did, IT WORKED.  IT WORKED.  Thank you, thank you and Thank you!  Seriously thank you!!!

I will update more later about Emily with how she is feeling and the most likely plan moving forward, but I really had to share the news!  (She is not done with treatment, but this is music to our ears!)

16 comments:

  1. I am so so happy!!!! Tears of joy here. Celebrate for sure!!!!

    ReplyDelete
  2. Awesome news Shannon! Still praying for you all!

    ReplyDelete
  3. That is the best news I've heard in weeks!
    I am so VERY excited for you all.
    Sending my love to you all....
    Have a WONDERFUL,GLORIOUS week-end :D

    ReplyDelete
  4. This is awesome news! I'm celebrating for you too!

    ReplyDelete
  5. Praise GOD!!!! He did this not us! This is His hand of intervention and a pure miracle!! Woot, way to go God!!

    Praising and praying!!
    <><

    ReplyDelete
  6. Praise GOD!!!! He did this not us! This is His hand of intervention and a pure miracle!! Woot, way to go God!!

    Praising and praying!!
    <><

    ReplyDelete
  7. YAAAAAYYYYYYYYY!!!!!!! Way to go Emily!
    I can't imagine how happy you all must be!

    ReplyDelete
  8. Awesome !!! Our God Hears Our Prayers !!! She is A Real Blessing To You All !!! Prayers and Hugs Will Continue On !! God Bless Grandma Genny

    ReplyDelete
  9. Awesome !!! Our God Is Good All The Time !!! God gave you a special daughter !! God is not done yet expect more to come !! God Bless grandma genny

    ReplyDelete
  10. Wow....I am jumping up and down....so great...really really great....go out and have a ball.

    ReplyDelete
  11. Chills and tears. Such wonderful news!

    ReplyDelete
  12. YAY!!! We are so happy for you Emily... You are such a brave and strong little girl. We love you!

    Bowles family

    ReplyDelete
  13. I am so excited for you Emily . . .I would do a happy dance . . .but I am afraid to cause myself some bodily damage! YOU are a true warrior!!!!! HUGE HUGS!!!!!!!! LOVE YOU!!!!!! Still keeping you and your family in my thoughts and prayers!!!!!!!

    ReplyDelete
  14. Emily . . .I am so happy for you! I hope that you will continue to have 90+ years of clear scans! You are a brave little warrior! I hope that you celebrate tonight and every day for
    the rest of your life!!!!!!!! HUGE HUGS!!!!! LOVE YOU!!!!!

    PS . . .I am still going to keep you and your family in my thoughts and prayers!!!!!

    ReplyDelete