PO Box 5383
Midlothian, VA 23112
We will also meet with Dr. Gowda again tomorrow more or less to see if anything else is available, hopefully view scans that should be here today from Michigan from the last time.and to check Emily's counts again. Her previous platelets were 43, so we are hoping that they are going up again! Some of the trials we talked about before was either something at Sloan Ketterling or CHOP. We will see. One of our biggest concerns is making sure that Emily stay on the same type of MIBG/CT scan and then making sure the trial is really what we want moving forward and has the obvious desire, getting rid of the new disease and not progressing.
We really hope to have a treatment plan soon, so that we know what we are doing moving forward. This being in limbo and not really sure of what is going on, is the disease progressing, a bit stressful.
I will try to update more later.