We had originally planned on doing three rounds of the Avastin/Irenotecan/Temador trial from the last set of scans in July to allow Emily time at home and more time at school. Last year on the first week of school, she was in Michigan getting scans, so she didn't get to really figure out what school was all about not being there the first week. We wanted Emily to enjoy life outside of the hospital and with her friends where she belongs.
Michigan was planned for September 12th and 13th to fit in clinic, meeting with Dr. Sholler, Bone Marrow Aspirates/Biopsy and scans. They normally don't do MIBG/CT Spects on Friday, but Emily's was scheduled for Friday and Dr. Sholler wasn't scheduled to be in Friday. We were concerned about not getting results, but was told several times they would make sure someone read the results to us before we left and before the weekend.
We did talk with Dr Sholler to go over the "what ifs" since she wouldn't be in on Friday so that when we received the results, we could make a decision on what we would do.
We love this little girl with all our heart. She is handling everything so well, and we couldn't be more proud of her. We will continue to walk along with her on this journey and hold her hand and fight with her.
Please check back later for results.
Remember to hug and kiss your kids and tell them how much you love them.