Today I made a phone call to CHOP to get a second opinion. I had to speak withs solid tumor nurse triage and she was absolutely amazing! She took all of our information and said I should receive an email with the checklist by Monday. She said I would also hear from the registration by Monday!
I must admit I was rather shocked to get the email from her as well as hear from registration! She already forwarded our information over to surgeon and the neuroblastoma doctor specialist. I explained our situation and what had occurred and she explained that "our situation" has happened several times! Seriously?? That is scary!
So we charge on and Do what we need to do to move forward and get a second opinion! I am overly nervous about this next round of chemotherapy with the serious side effects! One of those is hearing loss! I also understand many have horrible reaction and throwing up! It kills me to watch a child throw up! So we are hoping we can keep this to a minimal!
Tonight we are waiting for dad to get home and then camping tomorrow night!
Hug your kids tightly and love them with all you have!