Dr Gowda emailed me today and stated that the hma/vma was back and elevated a bit from the July 16th results! He recommends moving
forward with the MIBG scan! I have forwarded over his email to Dr Sholler and waiting for her response! I also sent them an email of Emily's updated photos of her spots!
At this point we are waiting for direction from Dr Sholler but to say we are devastated is a complete understatement! We are scared!