Emily's Journey through Stage IV High Risk Neuroblastoma. Please check back often as we will update as often as we can.

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Wednesday, January 1, 2014

Merry Christmas and Happy New Year with Update

Merry Christmas from The Hubbel  Family!

A couple days before Christmas, the ASK Childhood Cancer Foundation Holiday party was going on. Sue was here, so we went and Emily and Brianna had a great time, Jessie was at her dads that day, so she wasn't able to go. But we had a good time and it was nice because Emily was more involved this year compared to last years ASK Holiday party.

Emily started Day 1 Avastin the day after Christmas. She did really well with that,but it was a super long day at the clinic and Emilys platelets were at 29 , so she also required a transfusion. We were also told that her HMA/VMA were starting to creep up, so we really need to make decisions on what is next. Dr Sholler has emailed Chrystal Luois in Texas, so we are waiting to hear from her in what our next steps are and Dad and I are looking at trials in New York, St Jude and pretty much anything out there.

Happy New Year!!!

Our goal for the new year is still to bring Emily to NED. We know that we can't stop treatment and neither of her doctors here or in Michigan recommend stopping treatment. It's really just determining what we think is best next. Her doctor here thinks high dose chemo and her doctor in Michigan recommends DFMO, but she has been wanting us to do that each time. The other issue with starting a new treatment plan, is Emilys platelets... They have not been over 50 in a very long time, I honestly couldn't tell you the last time.

Emily had clinic yesterday just to check counts and platelets were at 29 again. She actually required a transfusion, but because they were closing early, have asked that she come back Friday for counts again to see if she is maintaining. She has two more days of chemo. It Is going well, but she isn't eating much.  She has lost a little bit of weight again, but we are at least 10 lbs up from where we were last year at this time. Day 15 avastin is next Thursday and we are still waiting to hear from Michigan on scan dates. At this point we are figuring out next plan...

Emily had a nice Christmas and stayed up late last night to watch the ball drop. 

Happy New Year!

#neuroblastomasucks #emilysjourney


Available to make donations via Emilys page

Mailing do donation to Dominion Credit Union to Emily Hubbels Account

Thank you again for your continue thoughts, prayers, love and donations, they mean more than you can imagine. Thank you for the Christmas cards, and those who sent gifts and love. Every bit helps so much, the prayers and love mean so much and for continuing to be part of her 3 year journey 

1 comment:

  1. Happy New Year! Hoping and praying this will be a year full of healing and health.