Emily's Journey through Stage IV High Risk Neuroblastoma. Please check back often as we will update as often as we can.

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Friday, November 21, 2014

Clinic Visit

Emily had a clinic visit today!!

They did a count check for labs, checked urine markers and vitals. Emily gained almost another pound which is great! Her blood pressure was up today and we haven't seen a high blood pressure in a while. Dr Gowda wants Emily to have an echo within the next month to see if anything has changed since we have not had one in 2 years! Labs came back and WBC, platelets and ANC have all dropped a little bit, nothing of huge concern, just gotta watch the trends and see what is happening. It is odd that they have dropped but they are all still in good numbers that Emily is fine.

We did talk about ferritin levels which are high but he explained that they are most likely high from many transfusions and some of the chemo she had he said if they continued to go up he would need to give her medication so it would not affect the liver.

HMA/VMA will be back next week sometime so we wil be able to see her urine numbers and how they are looking!

Next week is Thanksgiving and we look forward to spending time with family! It will be nice to have family time. We hope all of you have a wonderful Thanksgiving!

Don't forget you have until November 30th to collect bandaids for Emilys 3rd Annual bandaid drive! She was so excited to see Frozen Bandaids because we know so many girls love Frozen. After talking with the clinic today we heard that they don't see a lot of boy brand bandalds and horses. So if you want to help out you have until the 30th to send to our PO Box.

We leave Monday, December 1st for scans!! Don't forget to wear your Emily gear on December 4th the day Emily has her scans and we get results.. Continue to keep Emily in your thoughts!

Remember to hug and kiss your kids and tell them how much you love them.

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