Emily's Journey through Stage IV High Risk Neuroblastoma. Please check back often as we will update as often as we can.

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Sunday, February 20, 2011

Sunday, February 20, 2011

Emily on Saturday posing with her headband with the letter "E" on the flower. 


Saturday was a great day, Emily was having a blast, playing and having a good day.  We just hung low.  I did go out for groceries at Whole Foods, but I went alone since Emily can't go anywhere. We had dinner and things seem to be going well! About 1030 the girls were tired, so I laid down with them and stayed awake until 1130, Doug ran to Wal-Mart because Emily was going through tissues like crazy.  She still has the cough, runny nose. I fell asleep after 1130 and at 1230 Doug woke me up and said we had a problem.  I was still in a daze, but I was like...Emily has a temp of 104.1.  Wow, come on... so she got up and had something to drink and we tried to see if her temp would go down on its own.  Before we left for the hospital it was 102.

So, yes it was off to the ER at 2AM in the morning after talking to the on call doctor and she telling us to head on. Anyways once we got to the hospital her temp was 99.2 and the doctor there was feeling pretty comfortable that Emily would be able to go home after they did her counts and checked her temp again, however....that was not the case.  It was the longest night in the ER ever.  Seriously.  By 6AM, he was telling us that because her temp was 104 at home, she will need to be admitted, and they would be back in to check her temp.  By 720 AM it was 102. I think the night in ER was so long because about an hour after arriving, they had an emergency come in.  It seriously broke our hearts and we were praying and had our fingers crossed for this little girl.  I know later they said it still wasn't looking good, but she is only 2 months old and there was police, doctors and nurses everywhere.  We don't really know what was going on, but we were definitly saying some prayers for her.
 
So yes, Emily is back in the hospital.  Everyone was asleep this morning when they told me that and I just cried for Emily and for us.  You know after chemo, you come home and get back to normal life and enjoying having the family together and then all the sudden, this crappy temperature changes everything. Jessie was supposed to come home from her dad's today, and all of us would be home together.  So, although I guess I knew that this would be a possibility, I was just hoping and praying she wouldn't get it again especially with doing the GCSF everyday.  I can't tell you how much this (excuse me) sucked to hear. On top of that, we weren't prepared at all, meaning food wise. So that just makes things a bit harder on the situation and a bit more work on Doug.

Now Emily on the other hand is totally not taking this well at all. She does not want to be here, she has cried off and on and not just a cry, but a cry that breaks your  heart and you just want to cry right there with her.  I can't tell you guys how hard this is on her, on mom and dad (us) and her sisters.  It does disrupt everything and while we will do whatever we have to do for her, it still makes life hard. 

I didn't sleep in the ER last night, couldn't in the chair and Brianna wasn't about going to sleep, until about 530AM.   So I was exhausted.  We got to the room, Doug went to get our stuff out of the truck and Emily wanted a tubby. While she was getting a tubby, they did a RSV and Flu test, but later told me it takes 24 hours to come back.  That is crazy. Doug and Brianna went home to get food.  Thanks honey. Then Emily and I laid down for a nap, I was woken up by the doctor, but Emily is still sleeping!

Needless to say its been a long night and day!  Say prayers for Emily that she will be fever free for 24 hours and so she can go home. As always hold your kids tightly and love them with all you have!

10 comments:

  1. sending you all my thoughts and prayers, and some extra for the baby that was in the ER as well.

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  2. I am so sorry that she has a fever. I will send prayers her way and yours. Poor sweet girl. I cry for Emily and with you when I read your posts. I am always thinking about Emily and your family, as the donation button is on the top of my blog, and I look at it several times a day. Thank you for keeping everyone updated. I hope that she has no fever for the rest of today, so that you can all go home tomorrow.

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  3. Thinking of you all and sending healing thoughts to Emily.

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  4. Sending prayers & thoughts your way!!

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  5. I will be saying prayers for your family tonight. I hope she gets better fast. Our daughter got a 103.5 fever the other night and that scared the crap out of us ... I can not imagine what you all must feel like inside when your daughter spikes a fever now!

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  6. I am so sorry. I can't even imagine and how strong you and your whole family are. We are praying for you and Emily and the whole family. Stay strong!

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  7. I am praying for you and your family. I cannot even to begin to imagine what you are going through. Hugs and lots of love.

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  8. Praying with you and for you all. So sorry you are having to go through this.

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  9. I am so sorry to hear about all this. I do hope and pray that she stays fever free so that all of yall can go home. She is a strong little girl and will continue to be in our thoughts and prayers.

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  10. I'm so sorry to hear this...I can't imagine how difficult it is on all of you. Couldn't stop thinking of what you're going through while we were in the ER the other night. Prayers for you all.

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